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When diagnosed with Congenital Nephrotic Syndrome, one of most concerned questions is how long I can live. At the mention of congenital disease, many people will think the life of the patient will be shorten largely and there is no any hope to treat disease even though taking treatment. Is it really? What is the life expectancy for patients with congenital nephrotic syndrome?
Congenital Nephrotic Syndrome is a disorder passed down through families in which a babay develops protein in the urine and swelling of the body. It is diagnosed at or soon after birth. Indeed, it is a very rare form of nephrotic syndorme. But it occurs mostly in families of Finnish origin and develops shortly after birth.
As I think many of you know, Nephrotic Syndrome is a group of signs and symptoms and not a diagnosis in itself, which is characterized by massive proteinurine, severe edema, low protein in urine and high lipid level in blood. It shortens patients’ life span by affecting kidney from working normally.
Well then, what can they do to live longer with this life-threatening illness?
In general, to live a better and longer life, patients with congenital nephrotic syndrome need to:
1. Bring all the symptoms like proteinuria, swelling, hypoablbuminemia and hyperlipidemia under control, which plays an important part for slowing down illness progression. Some oral medicines like ACEIs can be used to achieve this goal.
2. A proper and beneficial diet can be an important part of a comprehensive treatment for Nephrotic Syndrome. Usually, patients need to adjust protein intake, fluid intake, fat intake and eat less salt. (Due to different illness condition, you can talk with our online doctors for an individualized diet plan. )
3. In terms of treatment of the disease, herbal treatment is the one worth trying. Although herbal treatment has so many advantages, it is not perfect. Compared with hormone medicines, herbal medicine works slowly. To avoid this shortcoming, Micro-Chinese Medicine Osmotherapy is created. Micro-Chinese Medicine Osmotherapy has all the advantages of herbal medicine and besides these, compared with traditional herbal medicines, it works faster.
Besides, an active attitude is also essential in the treatment and effective treatment can make a great effect on prolonging patients’ lifespan.